Hi,
I realize this is an old thread. However, I still feel my response will add to the discussion.
First, a bit about me. I am an adult with LD/ADHD who is very slowly tapering off of a psych coctail, which included Adderall.
When I last posted on these boards, I was very pro meds and anybody who wrote a post like the one I am about to write would get an argument from me. Quite an irony, eh?
Before I get started, as an FYI, I am not and I repeated, I am not a scientologist. They get associated with every anti meds post and I wanted to be clear that I am not one of them.
How did I get from being pro meds to anti meds? Well, the side effects that I experienced were becoming intolerable including tinnitus and a hearing loss. LD symptoms also worsened considerably.
My visual memory, which was never that great prior to being medicated started getting worse. For example, if I went to visit somebody who lived in an apartment complex that I had been to many times, unless I parked right in front of their apartment, I would forget where I had parked the car.
Wordfinding problems worsened considerably. I would not be able to think of words that I definitely had no problems coming up with prior to the side effects getting worse.
The worst symptom was overall memory. I would lose items that I had no memory of losing. It was like I never owned the items to begin with.
To the poster who talked about the kids who don't do well until they are medicated, even though your post is dated 2001, I will go ahead and address this issue as I am sure you aren't alone with those views.
I do understand the desperation of wanting to do something quickly when you see someone not coping in life or you aren't coping in life.
That is how I got on what I call the psychiatric treadmill. When I was given a test dose of ritalin for an ADHD test, I got things done I hadn't gotten done in years. So of course, I thought medication was the solution and when a psychiatrist also told me that an antidepressant would be good, of course, I accepted what he said.
But I had know then what awaited me as far as side effects, I would have rejected all meds and worked like heck to find non med related solutions. The short term gains were definitely not the long term pains I have encountered as the result of being on these meds. By the way, I haven't even told the whole story as this post would be way too long.
I am very concerned about how these meds are affecting kids with LD/ADHD. A friend of mine told a surgeon friend of hers about what happened to me and she wasn't surprised at all as she said these types of effects are very common with people with LD.
If meds can't be avoided, then what needs to happen is this. A plan should be written that will outline how often an assessment will take place as to whether a person still needs to be on meds or not. That is not done in most cases as psychiatrists are erroneously deciding that people need to be on meds for life. It wasn't done in my case.
By the way, I accept my share of responsibility for not asking about getting off these meds. But at the same time, my doctor also deserves his share of blame for not doing tha assessment.
Also, there needs to be an IEP type plan as to the non med alternatives that someone will take that will eventually enable to the person to transition off the meds. Again, that was not done in my case although again, I take responsibility for my share of the failings.
These meds needs to stop being treated like candy. I used to think that stimulants had a pretty benign side effect profile. But I recently found out that if you are on them for awhile, that is not the case.
Those of you who think my experience is simply out of the ordinary, think again. Med side effects that are supposedly rare are alot more common that what is reported.
Since I have been tapering off of psych meds, I am finding out that my coping abilities are alot better than I thought. I have been through crises like losing a job and dealing with a family member being in ICU. I have held up very well and have continued my tapering.
By the way, if you do decide to taper off of meds or have your kid do it, it needs to be done very slowly. The rates that doctors have you taper at are way too fast.
Well, if you have read this far, I thank you for staying with me. My intent is not to turn this thread into an anti-meds rant.
But because meds have worsened my LD symptoms, I don't want to see anyone else suffer like this
PT