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Caffine

Submitted by an LD OnLine user on

I have heard two sides on the use of caffine when one has ADD, I have heard that it can help and should be used as a way to keep focus on a task and I have also heard that one should avoid it at all costs because it makes it harder to foucs. What works for you? I have been avoiding caffine and have not noticed any diffrence.

Submitted by Anonymous on Thu, 05/08/2003 - 8:30 AM

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It’s strange that you mention this because I always stay on task better when drinking water (with lemon for some taste). Drinking soda makes me more thirsty, gives me flem, and makes my breath reek, which are distractions for me. Plus, caffine makes people stay up later.

Submitted by Anonymous on Fri, 05/09/2003 - 2:13 AM

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I think whether people can handle caffeine is a personal thing depending on their brain chemistry. Me, personally if i have too much of it i get really really hyper. Caffeine should be avoided however with most medications for adhd. It can cause your heart rate to go up way too much and a major increase in blood pressure. this is especially true if your bp is already high
ash

Submitted by Anonymous on Fri, 05/09/2003 - 8:42 PM

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PARENT NEWS ALERT! Sunday, April 27, 2003, our organization, Parents For Label and Drug Free Education, a grassroot parent organization, along with many supporters have alerted federal and state legislators and the U.S. Department of Justice about the forced psychiatric drugging being imposed on our children. Parents are being strong-armed with the threat of Child Protective Services, with charges of neglect for not wanting their children diagnosed with a mental disorder (ADHD) or wanting them drugged with dangerous Schedule II/Psychotropic drugs. Drug companies are targeting parents of young, normal children through ADHD support front groups. Drug companies have also increased their sales by directly marketing ADHD and stimulant drugs to parents using television and magazine advertisements. This propaganda leads unsuspecting parents to believe the fallacy that their children have brain abnormalities. Front groups such as (CH.A.D.D.) try to water down the fact that these stimulant drugs are powerful, addictive Cocaine like drugs. To See the actions of an organization funded by drug companies see the DEA website Page Click here >> http://www.usdoj.gov/dea/pubs/cngrtest/ct051600.htm Demand Proper Informed Consent! Without it, our children will continue to be harmed.

The purpose of this website is to educate parents regarding the unscientific nature of the ADHD diagnosis. Example: In 1998 at the National Institutes of Health Consensus on ADHD, the following statement was issued: “We do not have an independent, valid test for ADHD, and there is no data to indicate that ADHD is due to a brain malfunction”.

We wish to expose the health risks, dangers, and deaths that are a direct result of administering psycho-tropic drugs to children. These psycho-tropic drugs given to children labeled with ADHD include Ritalin, Methylphenidate, Concerta, Dexedrine, Dextrostat, and Metadate, just to name a few.

It is time for parents to come together and fight this horrific war against the drugging of our children, America’s future.

This crusade requires a united front. If you want to join, contribute, and/or become an active member of this justified crusade please contact us.

I hope our story and information will in some way benefit you and your child and prevent our tragedy from being your families reality and nightmare.

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Our fourteen year old son Matthew suddenly died on March 21, 2000. The cause of death was determined to be from the long-term (age 7-14) use of Methylphenidate, a drug commonly known as Ritalin.

According to Dr. Ljuba Dragovic, the Chief Pathologist of Oakland County, Michigan, upon autopsy, Matthew’s heart showed clear signs of small vessel damage caused from the use of Methylphenidate (Ritalin).

The certificate of death reads: “Death caused from Long Term Use of Methylphenidate, (Ritalin).”

I was told by one of the medical examiners that a full-grown man’s heart weighs about 350 grams and that Matthew’s heart’s weight was about 402 grams. Dr. Dragovic said this type of heart damage is smoldering and not easily detected with the standard test done for prescription refills. The standard test usually consists of blood work, listening to the heart, and questions about school behaviors, sleeping and eating habits.

*What is important to note here is that Matthew did not have any pre-existing heart condition or defect.

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Matthew’s story started in a small town within Berkley, Michigan. While in first grade Matthew was evaluated by the school, who believed he had ADHD. The school social worker, Monica Fuchs, kept calling us in for meetings. One morning at one of these meetings while waiting for the others to arrive, Monica told us that if we refused to take Matthew to the doctor and get him on Ritalin, child protective services could charge us for neglecting his educational and emotional needs. My wife and I were intimidated and scared. We believed that there was a very real possibility of losing our children if we did not comply with the schools threats.

Monica further explained ADHD to us, stating that it was a real brain disorder. She also went on to tell us that the Methylphenidate (Ritalin) was a very mild medication and would stimulate the brain stem and help Matthew focus.

We gave into the schools pressure and took our son to a pediatrician that they recommended. His name was Dr. John Dorsey of Birmingham, Michigan. While visiting Dr. Dorsey with the schools recommendation for Methylphenidate (Ritalin) in hand, I noted that he seemed frustrated with the school. He asked us to remind the school that he was not a pharmacy. I can only conclude from his comment that we were not the first parents sent to him by this school. Dr. Dorsey officially diagnosed Matthew with ADHD. The test used for the diagnosis was a five minute pencil twirling trick, resulting in me being handed a prescription for Methylphenidate/Ritalin.

It is important to note that the schools insistence and role in our son’s drugging was documented in a letter written by Monica to the pediatrician stating: “We would have hoped you would have started Matthew on a trial of medication by now”.

At no time were my wife and I ever told significant facts regarding the issue of ADHD and the drugs used to “treat it”. These significant facts withheld from us inevitably would have changed the road that we were headed down by ultimately altering the decisions we would have made.

We were not told that The Drug Enforcement Administration had classified Methylphenidate (Ritalin) as a Schedule II drug, comparable to Cocaine.

We were not told that Methylphenidate is also one of the top ten abused prescription drugs.

At no time were we informed of the unscientific nature of the disorder.

We were not told that there was widespread controversy among the medical establishment in regards to the validity of the disorder.

Furthermore, we were not provided with information involving the dangers of using Methylphenidate (Ritalin) as “treatment” for ADHD. One of these dangers includes the fact that Methylphenidate causes constriction of veins and arteries, causing the heart to work overtime and inevitably leading to damage to the organ itself.

We were not made aware of the large number of children’s deaths, that have been linked with these types of drugs used as “treatment”.

While Matthew was taking Methylphenidate (Ritalin), at no time, were we informed of any test: EKG, echocardiogram. These types of tests could have detected the damage done to his heart. These test are not considered “standard” in monitoring “treatment” of ADHD they are usually never administered to children. Sadly death is inevitable without the possibility of detection.

*I want to ask every parent out there these important questions:

How different would your decisions be if information was withheld from you? How different would your decisions be if you receive only distorted data?

I, myself, know that our families and Matthews outcome would have been quite different had we received all information. If I had known certain facts I would have acted differently and my son would be alive today. This I am sure of.

Informed Consent”, which states in part A person’s agreement to allow something to happen (such as surgery) that is based on a full disclosure of the facts needed to make the decision intelligently; i.e. knowledge of risks involved, alternatives etc” and “the probable risks against the probable benefits”

The violation of parent’s rights is when they are not told of the unscientific nature of so-called disorders such as ADHD or the risks of the treatments involving (drugs) and they certainly are not told of alternatives to their child’s behavior such as undiagnosed allergies or food sensitivities, which could manifest with the symptoms of what psychiatry calls ADHD.

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Here are some facts that are being withheld from parents that could possibly alter their life decisions and outcomes.

Did you know that schools receive additional money from state and federal government for every child labeled and drugged? This clearly demonstrates a possible “financial incentive” for schools to label and drug children. It also backs up the alarming rise/increase in the labeling and drugging that has taken place in the last decade within our schools.

Did you know that parents receiving welfare money from the government can get additional funds for every child that they have labeled and drugged? In this way, many lower socio-economic parents (many times single mothers) are reeled into the drugging by these financial incentives waved in front of them in hard times, making lifestyle changes possible.

Did you know that by labeling your child with ADHD, you are actually labeling them with a mental illness listed in the DSM-IV, the unscientific billing bible of psychiatry?

Did you know that a child taking a psycho-tropic, psycho-stimulant drug after the age of 12 is ineligible for military service?

Did you know that the subjective checklists that are being used as criteria for diagnosis are very similar to the checklists used to determine Gifted and Talented Children? These two checklists are almost identical.

The Drug Enforcement Administration clearly states in their report on Methylphenidate: “However, contrary to popular belief, stimulants like methylphenidate will affect normal children and adults in the same manner that they affect ADHD children. Behavioral or attentional improvements with methylphenidate treatment therefore is not diagnostic of ADHD.” (p.11) This statement thoroughly contradicts what is being told to many parents by the many “professionals” that have a vested stake in the diagnosis itself.

The DEA further states that: “Of particular concern is that most of the ADHD literature prepared for public consumption by CHADD and other groups and available to parents, does not address the abuse potential or actual abuse of methylphenidate. Instead, methylphenidate (usually referred to as Ritalin by these groups) is routinely portrayed as a benign, mild substance that is not associated with abuse or serious side effects. In reality, however, there is an abundance of scientific literature which indicates that methylphenidate shares the same abuse potential as other Schedule II stimulants.” (p.4)

Did you know that groups like CHADD and others available to parents are being supported financially by pharmaceutical companies? This is a red flag and demonstrates a conflict of interest in the role that these groups have regarding our children’s health and well-being.

Did you know that there are studies such as the Berkeley Study that contends that Ritalin and other stimulants further raise the risk of drug abuse? From the Wall Street Journal, Monday, May 17, 1999 by Marilyn Chase: “Nadine Lambert, a professor of education, followed almost 500 children for 26 years. She argues that exposure to Ritalin makes the brain more susceptible to the addictive power of cocaine and doubles the risk of abuse.” This study seems to never make it into the hands of parents because it doesn’t support the theories of those using the diagnosis to profit off of our children. What does seem to make it into many parents hands is research indicating that if children go “untreated”, which corresponds with “unmedicated” they will “self-medicate” or end up as juvenile delinquents. Sadly many of these parents are not aware that many of this biased and unproven research (one such is the Beiderman study) infiltrating our schools are actually being distributed by pharmaceutical companies, such as Novartis. This in itself is another red flag and conflict of interest surrounding our children’s health.

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I leave you with this question: How many more 11 year old Stephanie Hall’s, 14 year old Matthew Smith’s and 10 year old Shaina Dunkle’s need to die before we realize what is happening and speak out and act to put an end to it? One toy might be recalled if 1 or 2 children die from it. How many children have to die from these drugs before we realize and put an end to this horror. Why should hundreds or thousands have to die before we are outraged and act? Is the profit of so many, worth more than our children’s safety and lives? Sadly the deaths of these children have remained unexposed and suppressed for so long because there is a tremendous amount of money and profit at stake for so many. My son’s voice will not be one of those suppressed and quieted. His voice in death will be heard by all.

Lawrence T. Smith

Submitted by Anonymous on Sat, 05/10/2003 - 9:07 PM

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What’s helped SO FAR for me is 100mg daily ( upon wakening)of Wellbutrin SR-taken with NODOZ thruout the day as prescribed on the box(generic version available at Walgreen’s-NO DOZ-that is. This combination seems to help best FOR ME with regard to focus issues…

However, I’m now a nite-shift worker, and this of COURSE changes the whole medication dynamic-as I’ve developed and increasing tolerance of caffeine-that NOW that doesn’t keep me so alert at night; but does keep me awake during the day…

I’m hoping Provigil will stop this-but after taking it for just a few days-I’m awake at night-but scatterbrained-even more than usual. Due to the lack of sleep…so far? (maybe I’ll cut the dose presently 200mg a day)

What I HAVE found with Provigil-is that it kills appetite-like nothing else I’ve ever tried. And I’ve tried most everything…So, this aspect could prove promising for otherwise atttractive people-that desire to be skinny(maybe blonde)and REALLY dingy.

I’ll give it more time, however, as (like Wellbutrin)the side effects may subside
somewhat.

Submitted by Anonymous on Mon, 05/12/2003 - 6:55 AM

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Those combinations sound detrimental to the body, I hope that you have a doctors approval concerning the medication/nodoz mixture.

Submitted by Anonymous on Mon, 05/12/2003 - 2:53 PM

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I read that caffeine is a toxin to the ADHD brain. My boyfriend has been avoiding caffeine (drinks Sprite or caffeine free Coke instead of Coca Cola Classic now) and taking l-tyrosene (homeopathic and can get it at GNC) for about 1 month. He sees improvement at work, and I see improvement in his attentiveness toward me. He still swerves sometimes when driving, but hey improvement is improvement!

Submitted by Anonymous on Tue, 05/20/2003 - 3:09 AM

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Coffee/caffeine compounds do work for a very, very small group of those with ADHD. Anita Uhl Brothers, M.D. and Domeena C. Renshaw, M.D. have written about the benefits of coffee/caffeine compounds for some ADHD attention challenges. At the same time, many persons with ADHD need a stronger medicine than caffeine like Ritalin, Dexedrine, or Adderall.

Effects of caffeine on cognitive, psychomotor, and affective performance of children with Attention-Deficit/Hyperactivity Disorder.

M. Roth Leon

Studies examining caffeine’s effects on cognitive, psychomotor, and affective functioning of children with ADHD were reviewed. For children with ADHD, caffeine was more effective than no treatment in decreasing impulsivity, aggression, and parents’ and teachers’ perceptions of children’s symptom severity, and more effective than placebo in decreasing hyperactivity and teachers’ perceptions of children’s symptom severity, and in improving executive functioning/planning. Methylphenidate…

http://www.mhs.com/jad/abstracts/v4n1.htm

[%sig%]

Submitted by Anonymous on Sun, 06/22/2003 - 8:06 PM

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Caffeine is an alternative for me if I’m not on Adderall, but, when I’m on Adderall, I find that the caffeine really blocks the action of the Adderall. I usually end up falling asleep after a few Mountain Dews and Adderall. I’d been addicted to coffee on and off since the 8th grade. My first day on Adderall was the last day I was addicted to caffeine.

Submitted by Anonymous on Sun, 06/22/2003 - 8:45 PM

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Abstract: Does caffeine intake protect from Alzheimer’s disease?
by Maia L, De Mendonca A
AlzheimerSupport.com

07-15-2002

Caffeine is the most widely consumed behaviourally active substance in the western world. Neuroprotective effects of caffeine in low doses, chronically administered, have been shown in different experimental models. If caffeine intake could protect against neurodegeneration in Alzheimer’s disease (AD), then higher levels of caffeine consumption in normal subjects as compared with AD patients should be detectable in the presumably long period before diagnosis when insidious pathogenic changes are taking place. A case-control study was used: cases were 54 patients with probable AD fulfilling the National Institute of Neurologic and Communicative Disorders and Stroke and the AD and Related Disorders Association criteria, in a Dementia Clinics setting. Controls were 54 accompanying persons, cognitively normal, matched for age (+/-3 years) and sex. Patients with AD had an average daily caffeine intake of 73.9 +/- 97.9 mg during the 20 years that preceded diagnosis of AD, whereas the controls had an average daily caffeine intake of 198.7 +/- 135.7 mg during the corresponding 20 years of their lifetimes (P < 0.001, Wilcoxon signed ranks test). Using a logistic regression model, caffeine exposure during this period was found to be significantly inversely associated with AD (odds ratio=0.40, 95% confidence interval=0.25-0.67), whereas hypertension, diabetes, stroke, head trauma, smoking habits, alcohol consumption, non-steroid anti-inflammatory drugs, vitamin E, gastric disorders, heart disease, education and family history of dementia were not statistically significantly associated with AD. Caffeine intake was associated with a significantly lower risk for AD, independently of other possible confounding variables. These results, if confirmed with future prospective studies, may have a major impact on the prevention of AD.
Eur J Neurol 2002 Jul;9(4):377-82

More research to chew on.

Submitted by Anonymous on Wed, 07/16/2003 - 2:12 AM

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[quote=”Thetruth”]

07-15-2002

Caffeine is the most widely consumed behaviourally active substance in the western world.

More research to chew on.[/quote]

BRILLIANT. I don’t chew garbage!

Submitted by Julian on Sat, 08/09/2003 - 9:17 PM

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Hi, my name is Julian, I live at Tel Aviv.
I’m a 33 years old ADHD inattentive typen on hypekinetic , but impulsive.
My best focus, concentration and attention performances occur in the morning. In my experince, especially if I’m tyred, the equivalent to two or three cups of coffee helps to be in focus and attent. Overpassing these quantities I loose concentration and focus and become hyper( I stand up every ten minutes). I totally avoid caffeinne after 6 afternoon, then caffeine can help me in concentration but slighty in focus and none in attention. The price: I become tyred but a cannot sleep.
My best strategy is good sleeping, physical activity( convined with vitamin E and Ginkgo), taking plenty of water, a cup of coffee at the morning and strong tea as complement to intelectual activities that require effort as stduying.

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