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what does being "diagnosed" entail?

Submitted by an LD OnLine user on

i really need some answers and judging by many of the posts, a lot of you are really educated and up on all this ADD stuff since by having ADD, you learn things as you go about doctors, meds, and ADD in general.

to begin with, i have heard that “getting diagnosed” is not clear cut because the disorder is so complicated, since it can be tied in with any of several other factors like depression, learning diabilities, personality disorder, autism, etc. That it’s not always easy to just go to a doctor and get them to say you “have ADD” or “dont have ADD”. Even doctors say it’s hard to know exactly 100% what’s in someone’s head and they are still in the process of mastering how to treat ADD (since they often have to do “trial and error” to see what meds and dosages work best for YOU specifically). I’ve heard that just going to a doctor where they have you fill out a checklist of whether you experience the common “symptoms/characteristics” of ADD is not enough, because I guess if that’s all they based a diagnosis on, it’s certainly possible that a patient could lie when answering the questions so that even if they answer yes to every “symptom” of ADD, they dont have ADD at all.

well, after i was convinced I had ADD after reading up on it and taking online “tests”, i went to my doctor. He is a general practitioner but also has years of experience dealing with ADD adult, and ADD kids. He follows the DSV-IV (or whatever that thing is called) guidelines of how to diagnose (the thing with the special criteria that addresses inattentiveness, hyperness, and impulsiveness).
After i explained to him my symptoms, characteristics, and daily difficulties, he had me fill out some simple questionairres (basically, one with checklist questions re: inattentiveness, hyperness, and impulsiveness; and another to rule out depression; another to rule out alcoholism/drug abuse). finally, he asked whether i remember having the same problems i’m having now as a child before 7 years old (which is another part of the guidelines). i’m 30 now and i obviously cant remember specific things from that long ago, but i was able to come up with a few examples of inattentiveness, impulsiveness, and absentmindedness. And with just that, i was “diagnosed” with ADD. Also, my weight, temp, and blood pressure were also checked, so i dont know if that counts for a “physical” or if a physical is even a crucial requirement.

I’ve heard that a complete and thorough examination is needed, even possibly taking IQ tests and having a phsyical exam, to get diagnosed for ADD and that merely filling out a questionairre is not enough. I would also think that since this is a neurological disorder, you would need to see a neurologists or at least get a CAT scan of my brain or something. But since my doctor has years of ADD experience, was obviously going by the DSV-IV criteria (even though it was basically through questionnaires), he ruled out depression/alcoholism, and asked about my childhood…does all this count as an official and reliable diagnosis?
I hope you dont say i have to get a second opinion, because unfortunately i dont have health insurance and i cant afford that right now. I really totally think I have it since I experience just about EVERYTHING I have read about ADD (except the hyper stuff)

thanks for listening!

Submitted by Anonymous on Tue, 12/31/2002 - 2:08 AM

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Sally, You have really done your research. As an advocate, person w/undiagnosed ADD, husband and Children w/add, it is disheartening to say that diagnosing ADD is really subjective. That is, really a decision that is made through a checklist and possibly intelligence testing. A general practicioner with lots of “experience” (and you have to find out what type of experience he is talking about - does he just give out pills, does he have ADD, etc).
Although brain scans have been done for research, I know of no diagnosticians that use this for diagnosis.
A neurologist is a very good choice for diagnosis. The doctor can rule out other neurological problems such as epilepsy. Sometimes, they use a computer program to help with a diagnosis.
Intelligence testing can also be helpful. Sometimes a diagnosis of ADD that is given too quickly masks a learning disability. Although you can have both a learning disability and ADD. But on some tests, such as the WAIS, a professional can “tease out” a diagnosis of attention deficit disorder.
An auditory processing disorder is sometimes confused with attention deficit disorder - as the case with one of my sons. The auditory processing disorder is “how the brain and the ear talk to each other.”
One very important point is your family history. Do you have a parent, uncle, aunt, or sibling who exhibits the same type of behavior as a person with ADD?
And what do you feel inside yourself? You’ve read the books, taken the checklists, went to the doctor. Do you think you have ADD? You must also listen to yourself. You’ve done your homework….what do YOU think!!!
And if you think you have ADD and have done your homework, I, myself do not think it would be a terrible thing to try some medication, maybe along with some therapy.
If you think you may need some more help in the diagnosing, you might want to try your local health department…. Good Luck!!

Submitted by Anonymous on Sun, 02/02/2003 - 3:59 AM

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Deb-
I’d love to know more about how a school tester might “tease” ADHD dx out of the WAIS. Our son’s school doesn’t buy that he has the disorder, and has volunteered (reluctantly) to test him with this instrument. Makes me suspicious.

Submitted by Anonymous on Sun, 02/02/2003 - 4:01 AM

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Deb-
I’d love to know more about how a school tester might “tease” ADHD dx out of the WAIS. Our son’s school doesn’t buy that he has the disorder, and has volunteered (reluctantly) to test him with this instrument. Makes me suspicious.

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