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non verbal ld...help please

Submitted by an LD OnLine user on

Hello I have just discovered this web sight. I have found something that finally seems to fit my child more appropriately than any other diagnosis or explaination that I have been given. I have a 5 th grade boy that I think has a non verbal ld. I am looking for more information on this. He fits every discription in the article on this website except the fact he is having great difficulty reading. His rote memory is outstanding but has trouble applying reading decoding and phonics to the actual process. I have also had multiple behavioral problems with him in school. Now he is starting to be bully because he has no sense of social cues. He has a very limited sense of humor. In short again everything fits perfect to a non verbal learning disability. I am curious to learn more about this disability. Any information or experences would be appreciated. I am also upset as to why none of the $40,000.00 in doctors had told me about this, nor none of the teachers, school professionals,etc. He has been discriminated against and picked on by adults and children alike….and quiet frankly so have I. I was told by one Harvard educated DR. that it was bad parenting. P.S. I wised up after my second child was born and raised by the same parents, in the same environment has absolutely no behavioral issues.
[Modified by: SDSPM on March 26, 2007 08:32 PM]

Submitted by always_wondering on Tue, 03/27/2007 - 12:41 PM

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Dear SDSPM,

I have a very NLDish son who never was diagnosed as having NLD. He too had reading problems. His verbal iq was much greater than is performance iq. As it turned out, his reading problems stemmed from an underlying vision issue that eventually was diagnosed by a developmental optomotrist. You can see www.covd.org for certified eye doctors. You might want to check it out because your son can’t apply the rules of reading if he cannot consistently see the words properly.

Regarding the behavior issues, I know where you are coming from. Teachers kept telling me that I need to teach him how to ” fill in the blank of the day”. Only thing is, I tried different ways to get him to understand and apply the behavior with no avail. However, my daughter who is 4 years younger was told the same thing 1 time and got it. Because our children do not appear to be severly disabled, the expectation for their behavior is that of one without any disability. Therefore, it has to be the parent’s fault.

There is an yahoo group that is just for people with NLD and parents of children with NLD. I recommend you check it out.

Submitted by SDSPM on Tue, 03/27/2007 - 7:17 PM

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Thank you for the message. I will definately check out the yahoo site. I am actually going to present the school with the information I found next week. I hope they will be receptive. I saw something for autism about using a pager to signal a social cue. I think I may suggest that this way no one else (peers) need to know. What do you think?

Submitted by always_wondering on Thu, 03/29/2007 - 12:12 PM

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There are just too many factors to say if something like that would work. It depends on placement. Buy-in of the school and teacher. And how socially awkward your child is. Will your child know how to respond correctly in differing situations. One of the difficulities of alot of NLD kids is that each situation is new to them - even though they have been in similiar situations before.

Good luck with your school.

Submitted by geodob on Fri, 03/30/2007 - 5:57 AM

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You might like to have a look at this link, which has plenty of helpful information:
http://www.nldontheweb.org/

One thing that can be helpful with NLD, is a ‘Body Language’ book, which you can probably find in your local library.
As to the Pager, how would it actually be used?
Where it could create confusion?
Unless it was used carefully.
Perhaps to highlight a ‘social cue’that had just been learnt that day?
Geoff,

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