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got my boy retested...

Submitted by an LD OnLine user on

For those who may not know, my youngest son, my autistic child has been homeschooled for the last 2 1/2 years. We pulled him from a completely innapropriate program that offered nothing for remediation of his autism (but was easy enough for the staff to provide) and began working with him ourselves (ok, truth be told, my wife does most of the hands on schooling, I take care of other things). We started with a boy who was completely non-verbal, listed as moderately retarded, and the general consesnsu we got from our local medical, psychological and educational communities was that we should get over any sense of hope for him, that he would never improve, and that we should begin shopping for a residential placement for him soon.

We went back to the same Dr. we saw for our “2nd opinion (the schools did not like the first evaluation because it had the “A” word in it). The first time we went to see this good fellow we had to pay out the nose for it (and indeed had just got it paid off when we scheduled this new round of tests). Came to find out later that the schools should have paid for it, as they were the ones requesting the 2nd opinion, but we will just chalk that one up to a lesson in negotiating with “the bullies”. This time they did pay for it, and I only hope they get their money’s worth (I feel we did…)

So the testing went ok, although my boy was a little uncooperative. So when we went back for the results, we expected some improvement to show up. This is what we got…

In the two years+ since he was last evaluated his non verbal IQ went from 51 to 80, which is low end average. His problem solving ability was pegged at 90, which is age appropriate. True his verbal skills were right around 70, but when you compare that to the 37 they tested at last time it still is a pretty remarkable jump. My boy can no longer be considered mildly retarded, although if the schools had tested him they would have only performed the verbal testing, and he would still be “below room temperature” IQ ranhe (one more example of them disregarding the “a” in FAPE). He gained 4 years inability in the 2 ½ years since the good Dr. saw him last, and the schools can’t take credit for one flippin nickel of it. The credit goes to where it belongs, his homeschooling and the chelation he underwent for lead and mercury poisoning.

The good Dr. will write his recommendations in such a way that the schools will be upset I think. They do not like us homeschooling my boy, because it makes them look bad. They are going to like it less when they see that we are making progress and they are not (there was another autistic child in my boy’s class who was there a year before my boy, and was still there this past spring. In the 4 years the school had him he has not gained any ground, is still non-verbal, and his behaviors make him difficult to manage at best.).

Oh to be a fly on the wall when my useless Sped Director tears open that envelope… Normally I am not one to gloat (bad karma and all that) but I think in this case I would most definitely make an exception. So much for the hopelessness of autism and the uselessness of expending effort on trying to educate them! Now to begin the process of sharing my thoughts with my peers, the parents of the other 19 autistic children I have met so far (in my county). Our children are getting cheated out of the opportunity to improve their lot in life. If we need to sue the pants off of the schools to correct this, so be it…

“Fiat justicia, ruat colelum”

Let justice be served tho the heavens may fall…

Submitted by Anonymous on Fri, 05/31/2002 - 7:12 PM

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Dad,

What a wonderful validation of all the work you and your wife have done with your son!!!

Beth

Submitted by Anonymous on Fri, 05/31/2002 - 8:29 PM

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God bless you all-
I can hear your buttons popping from here! Congratulations to your son (and to you and your wife) and tell him welcome to the world from me.

Robin

Submitted by Anonymous on Sat, 06/01/2002 - 12:05 AM

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You are an inspiration to me and the many other parents
who will not give up on our kids in spite of the fact that many people
out there, including some schools and teachers, couldn’t care less.
Congratulations to you and your wife and your son. Your hard work
is paying off.
Stephanie

Submitted by Anonymous on Sat, 06/01/2002 - 2:51 AM

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Wow! Great stuff. I am grinning from ear to ear for your son, you and your wife! Your family is an inspiration.

Submitted by Anonymous on Sat, 06/01/2002 - 3:11 AM

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Way to go Dad. Bet you’re pleased to have followed gut instincts and done what you’ve did (you and your wife). You guys have got to be thrilled, and with good reason!

The only news I can share that makes me smile, is our beloved stuperintendent got busted for drunk driving today in a district vehicle! (Yes, I believe stuper is appropriate here). He made the evening news!

Anyway, massive congrats on the improvement!

Andy

Submitted by Anonymous on Sat, 06/01/2002 - 3:35 AM

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Dad, I add my most sincere congratulations! I will have to say that there is no substitute for the love and commitment of a parent with a severely delayed child. I do not believe the school could have made the progress you made even in the best of circumstances. You made the best possible choice. The public schools have never offered the “best” education. They offer average education for the average child. All the others are at a disadvantage. Forget the schools and keep doing what you’re doing so well. Suing the schools will never provide a one-on-one teacher with the love of a mother or father and the overwhelming desire to see that child succeed. You should be sharing your methods with other homeschooling parents of autistic children, so that they can gain the confidence to do what you did!

Janis

Submitted by Anonymous on Sat, 06/01/2002 - 11:24 AM

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Dad,
May God forever bless you and keep you. Don’t be surprised if the school offers you a teaching job!

Submitted by Anonymous on Sat, 06/01/2002 - 9:56 PM

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It would be great if you are writing a book. All Saints Church in our village just hosted anAutistic Awareness Day last Sunday.I recommended this website and bulletin boards. And everywhere I heard the same things : “you have to fight for what you get. I wish I knew what worked. The Mom’s need a break. I feel like I’m hoping against all hope.” You can offer hope at least.
And not to take too much away from the achievemnet of you and Mom, but you’ve got a son who beat the system. He’s a hero.

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