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Starting to be confused....

Submitted by an LD OnLine user on

My 6 y.o. dd has always had an articulation problem and has been in speech therapy since she was 3. She started public kindergarten this year and is one of the oldest in her class (fall birthday). The class is doing Saxon Phonics. At midyear, all K students were given a reading readiness test. My dd showed that she was having problems hearing the ending sounds of words. I talked with her SLP and she said she would do a couple of screening tests on her for phonological awareness and auditory processing. Her scores were significantly low on each.

At the same time, we tried getting her into Scotish Rite for a full evaluation and they denied us. We then went to an LD school and had her evaluated by the top person in the speech department. The conclusion was that she is very bright w/ high IQ but early reading skills were on the opposite end. She said this IS dyslexia when there is that much of a difference between the two scores. Their recommendation is starting her in a reading program using a multi-sensory approach like Alphabetic Phonics, SEE and LindaMood Bell. Only problem is, all of these programs are at least 1 hour away from us.

Now my head has been reeling about what to do with this information. Our school district does not provide anything until 3rd grade. I approached the head of the catholic school here about what they could offer or put together for my dd. I just got the call back and he basically said they could offer nothing until 2nd grade. He said that there is too much emphasis in the public schools on reading by the end of kindergarten. He said some children, even though they can be very bright, just are not ready to read at the age of 6 or even 7. His suggestion was leaving her alone and allowing her to be a child for 1st grade and he bet she would come along and be reading. Could he be right?

I also spoke with my pedi and she thinks I’m blowing things way out of proportion (she thinks I’m worried about whether or not my daughter graduates 2 or 10th in her class. couldn’t be more wrong.) She thinks there may be something to allowing her to wait it out a year.

I also then spoke with her SLP and she said she IS STRUGGLING in kindergarten and it will only get 10x worse in 1st grade.

So, now what to do with these 3 conflicting opinions? Would you push forward and kick back and wait and see?

Suzi

p.s…my dd is the carbon copy of my DH. They look exactly alike and act exactly alike. DH didn’t read until beginning of 2nd grade BUT that was WAY back when kindergarten was 1/2 day play time. This makes me wonder whether the catholic school’s opinion is correct.

Submitted by Anonymous on Mon, 05/19/2003 - 9:29 PM

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using the book “Reading Reflex”. Start by reading the first three chapters of that book. (Your library may have it, or it is widely available in bookstores for under $20.)

Do a search on Amazon under “phonological awareness” to find some books that will provide you with oral games you can play with your daughter (5 minutes at a time several times a day, in the car, etc.) to develop her phonological awareness. Again, your library may have copies of these books. Teach her to orally segment and blend words. Then start with “Reading Reflex”.

The above approach is likely to get her *much* farther much faster than anything else you mentioned in your post.

You also may want to start researching CAPD, and plan on getting a CAPD evaluation when your dd turns 7. If she has CAPD, she may benefit from sound therapies (The Listening Program, FastForWord) and/or bodywork (NeuroNet or occupational therapy).

Most pediatricians know ***nothing*** about child development as it relates to reading and academic development. They are simply not trained in it!

Nancy

Submitted by Anonymous on Mon, 05/19/2003 - 9:38 PM

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Click on LD In Depth on the top and then select reading. Read the article by
Joseph K. Torgesen “Catch Them Before They Fall Identification and assessment to Prevent Reading Failure in Young Children”

My thoughts as a parent of two LD kids now in High School. Your daughter has been tested and shows a deficit in phonological awareness which studies should is a key indicator of future reading problems. Your daughter has been recieving speech therapy since the age of 3. Kids receiving speech therapy at an early age are more likely to have reading problems then those who are not. I think you should take action an remediate in the next year because it will save you and your daughter a lot of grief.

Helen

Submitted by Anonymous on Mon, 05/19/2003 - 10:25 PM

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Well, I’m not an expert on this, but I would look into Earobics. It’s a software program in the $80 dollar range that you can do yourself at home with your child. It’s designed to help your child achieve automaticity [?] in matching phonemic sounds with their word counterparts. I bought it when our son was 11; it looked like just what he needed but the pictures were just a little too juvenile for him so he didn’t want to use it. (Too “grown up” for that software.) It’s a lot of short drills, so the key is to work with the program consistently until recognition is routine.

Another home alternative mentioned frequently on this board is using the teaching techniques outlined in the book “Reading Reflex.” It’s the do-it-yourself version of a program that available through trained providers [the name temporarily escapes me]. I bought it used from the Internet for about $8. By the time I found out about it (through these boards), my son was already starting to make significant progress with his tutor, so I never pursued it.

I believe the pediatrician is right. Some kids will just not master reading that early. Our older son could not read well until the end of second grade (he was getting SLP help for lack of phonemic awareness). Was pretty much reading on grade level after that. Our younger son (dyslexic) was still having trouble at the beginning of third grade. Both had November birthdays, so they were among the youngest kids in the class, and that just made it worse. [If only I knew then what I know now!]

I think I’d work on basic phonemic skills at home, but try to make it as much fun as possible. And I agree with the pediatrician—relax about the timetable for accomplishing this. She will get there… she’s got a mom that will find a way!

Submitted by Anonymous on Tue, 05/20/2003 - 3:33 AM

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Suzi, As I posted earlier, your scenario mimics ours very much. Our daughter was an early K (July birthday), and at the end of K was in the lower 30th percentile. We had her repeat K with a wonderful teacher, and she was holding her own. Mid-way through 1st grade, she was falling behind quickly — to the point that the teachers were commenting that she wasn’t working hard enough, laughing about her “writing in code,” etc. It was a horrible time for all of us. We’re fortunate enough to have options available — numerous private schools, some of which have strong program available. That doesn’t sound like its the same for you. Is there a good medical school not too far away that you could consult with? I’m sure you’ve had all the testing done, but they may know of resources that you aren’t being told about. We’ve tapped into some wonderful tutors through our educational psychologist. We’ve been lucky enough to find some retired teachers with soft spots for the kids who struggle, and they’ve made wonderful one-on-one tutors.

Submitted by Anonymous on Tue, 05/20/2003 - 10:13 AM

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I would try posting the above on the Teaching Reading board. There are some very skilled reading pro’s there who may offer detailed responses, as they often do.
I agree with the previous poster-get help now if you can. We have a high IQ dyslexic daughter. She knew there was something wrong in kindergarten, I didn’t really clue in until 2nd grade. Intensive private tutoring to catch up, child meltdowns and self-image problems would have been much less if we had moved earlier.

I vote to get help before your child fails. Don’t be swayed by the ‘maybe it’ll get better later’ talk. I am somewhat surprised that the SLP didn’t pick this up earlier and without your prompting. What’s up with that? Pattim on these boards is our SLP expert-what do you think, Pattim?

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Submitted by Anonymous on Tue, 05/20/2003 - 11:15 AM

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Well, I’m JUST a mom, but my daughter sounds a lot like yours. She was a November birthday, and I kept getting the “develpmentally delayed” runaround.

She was a child who sounds like she was actually much worse than yours. She couldn’t rhyme, sound out words, learn word families (?), write her name, sing with a group, etc. in K-5.

I bought the (Dev delayed) excuse that year. 1st grade came. She took 3 hours to do one sheet of work and/or write sentences you couldn’t read. She never finished her work and spent most of her time catching up on work during recess and/or “standing on the fence” for punishment for not finishing in class. Yet, she was the only one in the class that knew what a compound word was.

She had to be tutored in reading (by the school (?) in order to pass 1st grade. We diagnosed SLD in all areas (basically dyslexia but my evaluator knew that was a word that wouldn’t help in our area school). Found out she was high IQ (like yours).

After 2 years of LMB and SI OT, she now is reading above grade level. Hand writing is beautiful, but slower than average. We still need “time” accommodations on major projects and long reading assignments, and she enjoys textbooks on tape as a review for tests. SHe also uses technology in the classroom.

I DON”T vote for wait and see. I vote for getting some good sound reading instruction. I ONLY have experience with LMB and what it did for my daughter. (We did 2xwkly). I have heard very good results from other programs.

Everyone on this bb may not agree the same type of reading instruction, but I’d be willing to bet that MOST will agree NOT to wait.

Submitted by Anonymous on Tue, 05/20/2003 - 2:17 PM

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Many people thought I was nuts for thinking my son had a problem. In preschool they thought he was just great. His kindergarten teacher did see the problem but I was still in denial because of what everyone else said.

I wish I acted earlier.

Research based methods will help any child.

A good SLP should be doing the sounds with her and building her phonemic awareness. If this is not happening I would check into an SLP who addressed this issue. If it is happening and your daughter is getting it there is a problem.

Submitted by Anonymous on Tue, 05/20/2003 - 3:16 PM

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Suzi,

I don’t think he is right. You have described a child who very likely is both gifted and has learning disabilities. Check out the LD Depth section to learn more about this. As a parent of such a child who received very early intervention (starting in first grade, educationally, with OT beginning at age 4), I can tell you that early remediation is key. MY child, who has a very high IQ and carries multiple diagnoses, including dyslexia, dysgraphia, developmental coordination disorder and ADHD, ended up in a class for gt/ld children by second grade. Today is a a 12 year old sixth grade at a private school for gifted boys. He has a consistent straight A average. He loves to read (though he reads almost entirely by recognizing words and has weak phonemic awareness) and reads well above grade level. By contrast, his peers who did not receiving services until later are mostly still in special ed classrooms and are continuing to experience serious difficulties. Many of them are angry and frustrated and hate school with a passion. Don’t wait and see! Getting help right now can only enhance your child’s learning, even if she doesn’t have a true LD. It could save you and your child years of grief.

Andrea

Submitted by Anonymous on Wed, 05/21/2003 - 11:57 AM

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Suzi , just adding my voice to all the others. Jump on this now and you will save your child and yourself loads of anxiety and grief later on. My son too had mild speech issues and at the end of Kindergarten (after a great year) we became aware that he might not be hearing the ending sounds in words correctly. We didn’t begin actual reading remediation and I am very sorry now that we didn’t.

We continued with speech therapy, but waited until 2nd grade to attack his poor phonemic skills. In the past year he has made great strides with an ortongillingham tutor, and a 4 week stint with Lindamood Bell. But I sure do wish we had understand back then what we needed to do. I agree with the other posters that Phonographix is something you can do at home. Also, many speech therapists have Lindamood Bell training, so perhaps your current therapist can provide some of the remediation?

Good luck!!

Submitted by Anonymous on Wed, 05/28/2003 - 5:01 PM

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I would give a limb to have had our son’s needs identified when he was in preschool or kindergarten (or even younger, preferably). We found out at the end of second grade, when so much time had been lost. (Actually, there were test results on file in Kevin’s accum file at his school that he had been tested by an SLP in kindergarten, but those results were never shared with us, a direct violation of state law - ooops!)

Anyway, it has been our experience that your average bear educator or pediatrician knows NOTHING about many of these issues. Our son’s physician wasn’t even sure what CAPD was. So I would encourage you to bang the drum and beat the doors down to get your child help NOW. If you have a complex that you’d like to be everybody’s best friend and don’t ever want to make anybody mad, you might want to lose it. In the end, you may not be the most popular parent at your kid’s school or at your pediatrician’s office, but your child will be better off. Having said that, remember also: more bees with honey than vinegar works best.

Incidentally, we, too, strongly believe that our son’s disability(ies) run in our family and that my successful, national board-certified teacher husband had/has these exact same disabilities, but of course, in the 50s and 60s, nobody knew anything about it. He just worked very, very hard because he was afraid of the nuns.

Good luck!

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